course of two years she’d noticed her vision deteriorating, but at first her
mom didn’t really believe her – especially not when she complained of having double
thought she just wanted new glasses,” says Nastasjha Botha, from Allen Grove in
Kempton Park, Gauteng, explaining how things began to change for her
19-year-old daughter, Amy.
October last year Amy’s double vision had become so bad her mom took her to an
optician, who took one look at Amy’s eyes and realised something was terribly
several scans and blood tests he gave them the bad news: Amy has an extremely
rare condition known as idiopathic intracranial hypertension (IIH), which means
the pressure inside her skull is increasing. But it wasn’t the only bad
on 14 December last year,” Nastasjha recalls. “I was at work when Amy called
and said she couldn’t see out of her left eye. I knew something serious was
increased Amy’s medication but her vision kept deteriorating.
January this year she started noticing a difference in her right eye. She’s
lost so much sight in her right eye that she can now barely see through it.
has an operation soon her blindness will become permanent,” Nastasjha says.
hoping a ventricular shunt to relieve the pressure on her brain will help to
restore her vision.
problem is the Botha family don’t have medical aid.
recently Amy had been going for treatment at the Steve Biko Academic Hospital in
Pretoria to have cerebral spinal fluid drawn from her skull to reduce the
pressure on her brain.
each session her medication was also increased. The medication makes Amy nauseous
and even causes hallucinations.
struggling with headaches and sometimes becomes hysterical with pain,” Nastasjha
only hope lies in surgery, she adds. Unfortunately there’s a long waiting list
at Steve Biko for this kind of operation. “The neurologist advised us to go to
a private hospital because Amy needs surgery as soon as possible. She can’t
wait any longer,” Nastasjha says.
information on Amy and the operation she needs, go to her Facebook page, Help
Amy Get A Shunt.