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Updated 25 July 2018

12-year-old boy’s rare disease is turning him into stone

A young boy is suffering from a rare and debilitating disease which causes his skin to turn hard like stone.

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A young boy is suffering from a rare and debilitating disease which causes his skin to turn hard like stone.

In 2013 Jaiden Rogers from Colorado, US, was diagnosed with stiff skin syndrome – a rare syndrome characterised by hard, thick skin – after his parents Tim and Natalie Rogers spotted a hard lump on his neck, reports People.

“His skin is basically like stone,” says his mom Natalie. “It’s like tapping on a countertop.”

The disease quickly spread to his stomach, hips, legs, and chest, which has left Jaiden battling to breathe.

At first chemotherapy slowed down the progressive disease, but his symptoms have since gotten worse, leaving the 12-year-old in a wheelchair and in severe pain, reports Tomo News.

Jaiden’s life has always been challenging. The upbeat boy was born to a single mom and later adopted by the Rogers because his biological mother couldn’t financially support him.

“We spent the first few years teaching him how to speak, playing with him, and just trying to be a family,” says Natalie.

He was also diagnosed with autism at the age of five, which made it hard for him to socialise with other kids, reports Fox News.

Jaiden is currently being treated with chemotherapy and pain medication to help relieve his agony.

Tim and Natalie have started a GoFundMe page to help pay for their son’s medical expenses and find a cure for him.

“Money is in the way. We just want our boy to live.

“We’ve taken out three mortgages on our home and have spent Tim’s retirement. There is nothing else we can do.”

“We just keep plugging away and trying to find something. We do what we have to do.”

Sources: foxnews.com, people.com, tomonews.com, rarediseases

 
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