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Incontinence

Question
Posted by: Lily | 2020/07/27

Q.

18-year-old with Nocturnal enuresis

To whom it may concern, My name is Lily. I am am an 18-year-old female. For my whole life, I have had problems with bedwetting; I wake up in the night and my bed is soaked with pee and it is not a matter of me being lazy. ( I do not have incontinence during the day). There are times when this problem has gotten better, but it has never completely gone away and has always been an issue that I worry about and am deeply embarrassed about and ashamed of. It has been especially bad recently (I wet the bed 3 times this week), and is making me feel depressed and hopeless. Sleeping anywhere besides my home is always a source of stress to me because I have this nagging fear that I will wet the bed. Over the years, I have attempted many treatments for my bedwetting; I have seen urologists, done physical therapy, taken desmopressin, set alarms to wake up in the night, cut back my liquid intake in the evenings, had my bladder checked for abnormalities (there are none), used moisture-sensitive alarms, and attempted to train myself to make sure that I am fully awake when I get up in the night to urinate. Sadly, none of these solutions have worked. People say that bedwetting is a problem that people grow out of, but I am starting to believe that I never will. I have a congenital heart defect/disease called hypoplastic left heart syndrome (HLHS) which essentially means that I am living with a single-ventricle, dual-chambered heart and my blood flows passively to my lungs instead of being actively pumped there. I also found out about 2 years ago that I have dual renal duplication, which means that I have 4 kidneys instead of 2. I am wondering if any of these medical abnormalities that I have is causing my bedwetting to persist (Am I sleeping too deeply because of my heart condition and so I don't wake up in time to urinate in the bathroom? Or does my kidney anomaly cause my body to produce more urine than normal? Does anyone have any advice of what I could do next? I am open to literally ANYTHING, surgery, treatment, whatever ; I would give anything to be healed of this bedwetting. Best, Lily

Expert's Reply

A.

Incontinence Expert
- 2020/08/03

Dear Lily

It is difficult to explain why you are still having trouble.
Usually, you would have outgrown this problem by this age.
I would suggest Minirin melt ( a version  of desmopressin), and reassess thereafter.
It is reassuring that you do not wet during the day.
Kind regards
Prenevin

The information provided does not constitute a diagnosis of your condition. You should consult a medical practitioner or other appropriate health care professional for a physical exmanication, diagnosis and formal advice. Health24 and the expert accept no responsibility or liability for any damage or personal harm you may suffer resulting from making use of this content.

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