Posted by: Reinardt' s mom | 2008/12/05


Photosensitive Epilepsy

I refer to my question regarding Meningitis, GBS and epilepsy dd 4 Dec 08. My son is on Epilim for his condition for 3 months now. He still rotates his eyes when exposed to the sun, together with a hand movement in front of his eyes. Will this action go away after a while? What leads to this reaction. Even if he wears his Polaroid sunglasses he still does it. Is it becoming a habit or is it uncontrollable? Will it help if we reprimand him when doing it, or is it part of the Epilepsy? I' m new to this condition and I' m not quite sure how to handle it. He doesn' t fit - blanks out for a few seconds. He does however experience " weird"  feelings like tremblings through his body and being very tired, but that can also be residuals from GBS.
Thank you for the previous response.

Expert's Reply



The trembing feelings that your son has could be remaining symptoms from his GBS. The fact that he blanks out for a few seconds suggests that he has a form of epilepsy called petit mal or absence episodes. Please ask your paediatric neurologist about this as specific treatment is needed for this problem. I do hope that he is being cared for by a paediatric neurologist because his problems are complex. His light sensitivity is not something that he is doing deliberately and you must not under any circumstances reprimand him for complaining about it.It may be due to the types of epilepsy he has. In the meantime good sunglasses are certainly needed.

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Posted by: Reinardt' s mom | 2008/12/07

Thanks again for the response.
Yes, Reinardt is getting treatment from Dr Lippert (Paediatric neurologist). He treated Reinardt when he contracted GBS and is well aware of my son' s special needs and symptoms. I on the other hand is seeking all the information possible to help understand what he is going through. Just one question: getting meningitis, GBS and epilepsy - does it mean that there is something abnormal in Reinardt' s brain? Any suggestions on how I should respond to him or do you think he' ll be ok?
Thank you!

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