Posted by: Worried Aunt | 2008/12/11


Fibrovascular Complex

Good Afternoon, please could you explain exactly what above condition is. My sister' s 5 month old baby was diagnosed with that today and we need more info on treatment and anything else related to it please. Also note that she has also been diagnosed with Incontinentia Pigmenti at birth. Thanks for the help.

Expert's Reply



Much as I would like to reassure you, this condition is a very serious problem.I presume that your sister's baby is a little girl as male babies usually do not survive with this syndrome.Incontinentia pigmenti is an inherited condition which results in several distressing problems for the baby including blistering of the skin followed by unusual small growths on the skin [almost like warts].Then areas of increased pigmentation start developing followed by areas of depigmentation. In most children with this syndrome there are also abnormalities of the hair, teeth and eyes with the problem of macular degeneration and retinal detachment occurring. The eye changes are related to the development of unusual tissue [fibrovascular tissue] growing into the retina of the eye.Your sister must see a geneticist for advice and counselling.

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