This syndrome implies that the nerves at the very end of the spine (caudal) are involved. This is a very rare diagnosis in children that can easily be confused with many other nerve abnormalities e.g. Hirsprung's disease. It is important that the person who made the diagnsosis must refer you to a specialist centre. It will be essential to confirm the diagnosis, before long term treatment plans are made. Treatment will include regular feed-back and follow-up as necessary.
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