Childhood Diseases

Posted by: Anonymous | 2009/05/25


AV malformation

My 1year old baby has been diagnosed with an AV malformation on the bridge of his nose.
The treatment options seem to be limited. I have tried to search but it seems AV malformations happen inside the skull and treatment is different. I was told that its too large for lazor and that bleomycin injections is the way to treat. The AV is not that big, its a blue/bruise glow under his skin.

Researching bleomycin it seems a toxic drug and I worry about the effects this will have on his little body. My paed thinks it should be treated now as it can grow and my GP thinks we should wait and see what happens as there is no urgency. I just don' t know what to do. My question is: What are the other health risks of using this drug? Would it be better to treat when he is older. I wonder this because he is a Downsie baby without congental complicaitons and I was told they have other immunity/resistance issues and they are prone to leukamia etc. Can this treatment make his risk greater?
Also is it possible that other lazor treatment options may be available in the private sector and is it worth considering this option? apologies for all my questions, this is such a dilemma on knowing what is best.

Expert's Reply



Unfortunately I have not had any experience in dealing with this unusual abnormality, although usually there is no need to rush into treatment.With all the treatment dilemmas you face here it would be best to consult an ENT specialist for an opinion. I am sorry that I am unable to assist you more.

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