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Lung cancer

Updated 07 March 2016

Twitter may help cancer research

Twitter might help boost the number of cancer patients who enrol in clinical trials of potential treatments, a new study suggests.

A number of cancer centre and cancer care groups use Twitter, the online social networking service, to provide health information and education. But it wasn't known how much information about cancer clinical trials was available on Twitter.

Mental support

To find out, researchers analysed more than 1,500 tweets that contained the term "lung cancer" during two weeks in January 2015.

More than half of the tweets (56 percent) were about giving and receiving mental support or about prevention. However, nearly 18 percent were about clinical trials, and 42 percent of them were tweeted by individuals such as patients, health professionals and patient advocates.

Read: Breath test may reveal early-stage lung cancer

"We were surprised to see that after dialogues concerning support and prevention, the next largest category of tweets were about clinical trials," said study author Dr Mina Sedrak. He is a fellow in the division of haematology/oncology in the Perelman School of Medicine at the University of Pennsylvania in Philadelphia.

Most of the clinical trial-related tweets were about human tests of a drug or device. Of those, 79 percent were about immunotherapy, which was still experimental at the time of the study, and 86 percent had embedded links to relevant news articles, the study authors said in a university news release.

However, only one of the clinical trial-related tweets linked to a patient recruitment website, according to the study published in the journal JAMA Oncology.

Read: Poor people participate in cancer trials less often

The findings suggest that Twitter may be an effective but underused way to create interest and increase enrolment in cancer clinical trials. Only about 5 percent of adult cancer patients take part in such studies, the researchers said.

Promising and novel avenue

"This is an unsolved societal problem," said Sedrak, a member of the Abramson Cancer Centre of the University of Pennsylvania.

"Twitter provides a promising and novel avenue for exploring how cancer patients conceptualise and communicate about their health, and may have the potential to promote much-needed clinical trial recruitment," he said.

"We need to learn more about the ecology of social media, because it is clearly not consistently directing patients to the right places," Sedrak said.

"Social media may provide an infrastructure for cancer centres, researchers, and physicians to interact with the public in new and productive ways, including stimulating interest in new clinical trials with targeted messages that connect patients, caregivers, and families with trial enrolment websites. This potential remains largely untapped," he said.

Read more:

Is social media bad for your mental health?

Twitter could become your breast cancer information source

Kickstart your health with nutrition chat on Twitter

Image: Cellphone with Twitter app open from iStock

 

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CANSA’s purpose is to lead the fight against cancer in South Africa. Its mission is to be the preferred non-profit organisation that enables research, educates the public and provides support to all people affected by cancer. Questions are answered by CANSA’s Head of Health Professor Michael Herbst. For more information, visit cansa.org.za.

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