Updated 13 September 2019

"Get me to 21" girl Jenna Lowe has died from pulmonary arterial hypertension

20 year-old South African Jenna Lowe who, after being diagnosed with pulmonary arterial hypertension became South Africa's voice for organ donation with her campaign Get Me To 21, has passed away.

South African organ donor hero Jenna Lowe passed away yesterday, Monday the 8th of June, just four months shy of her 21st birthday that she so desperately wanted to make.

Diagnosed with pulmonary arterial hypertension three years ago, Jenna tirelessly worked her way into the South African spotlight with her campaign #GetMeTo21. Through the campaign she raised awareness for organ donation by appealing for a new set of lungs that she desperately needed to survive until her 21st birthday. The campaign encouraged South Africans to register as organ donors in order to receive an invite to Jenna's 21st - a party that was not only for Jenna but also for 4000 other South Africans waiting for organs. Watch her viral campaign video here.

Jenna was widely acknowledged for her efforts in raising awareness for organ donation. In 2014, she was awarded the Lead SA Youth Hero Award and was also visited and thanked in person by Helen Zille, the Independent Online reports.

jenna lowe with her Lead SA award

Towards the end of 2014, Jenna was matched with a pair of lungs and underwent a lung transplant in December, Times Live reports. She spent over five months in hospital after the transplant and suffered a number of serious complications. Last month her mother, Gabi Lowe, posted the following update on Jenna's Facebook group:

jenna lowe passes away from pulmonary hypertension

Jenna's family played a pivotal role in the campaign, giving talks and raising awareness when Jenna was too unwell to leave their home. Her family set up the Jenna Lowe Foundation in her name to raise awareness of the condition and to assist other patients in getting earlier diagnoses and treatment. Learn more about the foundation's work by watching the video below:

Pulmonary arterial hypertension is a rare lung disease that causes the arteries and blood vessels in the lungs to narrow. This forces the heart to work harder to properly oxygenate the lungs, weakening it over time. 

Signs and symptoms of pulmonary hypertension (PH) may include:

- Shortness of breath during routine activity, such as climbing two flights of stairs

- Tiredness

- Chest pain

- A racing heartbeat

- Pain on the upper right side of the abdomen

- Decreased appetite

Registering as an organ donor

Currently there are over 4000 South African adults and children waiting for organs. Through the initiative Save 7 Lives, you can register as an organ donor in South Africa. The idea behind Save 7 Lives is that each donor is able to give one heart, two lungs, one liver, two kidneys and one pancreas and therefore can potentially save the lives of 7 other people.

Registering is easy. Simply click this link and fill in the form.

Read more:

Help Jenna reach her 21st birthday

Unhealthy SA lifestyles boost organ demand

SA needs organ donors


Read Health24’s Comments Policy

Comment on this story
Comments have been closed for this article.

Ask the Expert

Hypertension expert

Dr Jacomien de Villiers qualified as a specialist physician at the University of Pretoria in 1995. She worked at various clinics at the Department of Internal Medicine, Steve Biko Hospital, these include General Internal Medicine, Hypertension, Diabetes and Cardiology. She has run a private practice since 2001, as well as a consultant post at the Endocrine Clinic of Steve Biko Hospital.

Still have a question?

Get free advice from our panel of experts

The information provided does not constitute a diagnosis of your condition. You should consult a medical practitioner or other appropriate health care professional for a physical exmanication, diagnosis and formal advice. Health24 and the expert accept no responsibility or liability for any damage or personal harm you may suffer resulting from making use of this content.

* You must accept our condition

Forum Rules