Updated 26 July 2017

'She is not dead,' says family of brain-dead girl

A Californian family wants their brain-dead teen's death certificate revoked as they are convinced she is still alive.

More than three years after a coroner declared a teenage girl dead, a Northern California judge is expected to soon decide whether to revoke her death certificate.

In court documents filed last month supporting the family's lawsuit to have the death certificate revoked, retired neurologist Dr Alan Shewmon said videos recorded by Jahi McMath's family from 2014 to 2016 show the teen is still alive.

Family disputes claim

Shewmon is a longtime critic of how brain death is defined and has filed similar court papers supporting efforts by McMath's family to undo the death certificate. The family has previously shown video clips of McMath twitching her fingers, which they said showed she still has brain function.

Several doctors, including two hired by an Alameda County court, have said brain-dead patients can still twitch and move slightly. Doctors at Children's Hospital in Oakland, California declared 13-year-old McMath brain dead in December 2013 after a routine tonsillectomy went awry.

Jahi's mother has previously acknowledged that her daughter's brain is severely and irreparably damaged. But Latasha Spears Winkfield said her daughter is still alive and her Christian belief compels her fight to keep her daughter on life support.

The case adds to the debate over parents' right to choose children's medical treatment. The parents of 11-month-old Charlie Gard announced they were dropping their legal fight in London to stop doctors from switching off their baby's life support. They previously resisted, arguing that an experimental treatment could extend and improve Charlie's life.

Family argues over footage

Lawyers for the California hospital argued in court documents that the family's attorneys have declined to turn over to them the most recent video clips Shewmon said he viewed. The lawyers also said they want copies of the videos so they can independently analyse the footage.

Hospital lawyer Jennifer Still said in a court filing that "body movements could be easily manipulated". Still said McMath was "typically covered up with blankets" in videos previously shown by the family, making it impossible to determine if something might have been occurring under the blankets to make the body move.

"Often the camera only shows a convenient angle, such as a close up of her foot or hand," Still wrote. Still said in an interview that the since the family has not subjected McMath to tests accepted by the American Medical Association to determine whether someone is brain dead.

Bruce Brusavich and Andrew Chang, lawyers representing Jahi's family, did not return telephone messages left at their offices seeking comment. Jahi's family moved her to New Jersey because of that state's only-in-the US law that prohibits doctors from removing brain-dead patients from ventilators over families with religious objections. A judge heard arguments on the case and is expected to rule in the next two months whether to allow the lawsuit to proceed.

Another court case 

The South African Journal of Bioethics and Law published an article on the interesting case of Marlise Munoz, a 33-year-old woman from Texas. She was declared brain-dead after she was found unconscious on her kitchen floor after suffering a pulmonary embolism.

She was 14 weeks pregnant at the time of her death and her husband defended her case in court to take her off the machines, as it was her wish not to be kept alive artificially. However, the fact that she was pregnant made the case different, as she was still sustaining life within her.

Her husband argued that she was legally dead and should be treated as such. As a result of the lack of oxygen, there was evidence that the foetus also ceased to properly develop. Eventually, the machines were switched off.

This case is interesting as courts are still undecided as to what is seen as legal death.

How is brain death defined?

According to Health24, the lack of a beating heart and breath are not the only things needed to establish death. In the case of a brain injury, death may occur hours before the heart stops beating.

Relatives also find the concept of brain death difficult to grasp, hence the inability to accept death as “real”. When doctors use the term "brain death", they actually are referring to the death of the brain stem, which controls functions such as breathing and circulation

However, there are several tests to carry out in order to make a final decision. Doctors will make sure that the coma is not caused by medication, metabolic or endocrine disturbances, or hypothermia. A comprehensive absence of reflexes must then be present. Finally, if there is no breathing movement detected, the doctor will make the decision to switch off life support. 

Read more:

Brain death guidelines revised

Spark revives damaged brain

Brain death not the end


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