Our expert says:
I suspect that Huntingdon's is too rare for there to be enough people in one city at the same time, for a specific support group. But I think there are some for people with a range of neurological disorders, which have similar features. And a personal counsellor would probably be the best place to start. I understand your excellent thinking here. Maybe check with his neurologist, or the University / Medical School Dept of Genetics, to see if they know of a suitable support group
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