Posted by: Marlize | 2008/09/10

Myotonic dystrophy

Steinert' s disease  myotonic dystrophy

My Mom was diagnosed with this disease 9 months ago. Is there any support groups or a foundations for these patients or do you perhaps know how I could get something like this started. Your help would be highly appreciated, we need to make her life a little easier, if only I knew where to start. Regards, Marlize

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Our expert says:
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Thank you for visiting

I am unable to find any support groups for myotonic dystrophy in South Africa. I therefore, recommend that you contact the Association for the physically disabled, as they will be able to advise you about how to start a support group.

Kind regards

Dr Anrich Burger

The information provided does not constitute a diagnosis of your condition. You should consult a medical practitioner or other appropriate health care professional for a physical exmanication, diagnosis and formal advice. Health24 and the expert accept no responsibility or liability for any damage or personal harm you may suffer resulting from making use of this content.

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