advertisement
 

General Newsletter

Sign up for our newsletter to get all the latest health news


 

Positive living

Last updated: Wednesday, October 28, 2009 Print
 

Linda Booi's* (23) nightmare began when she completed a short HIV/Aids course at Technikon at the time she was studying towards a National Diploma in Accounting. At the back of her mind were the passionate nights she had spent with her partner. They had used no condoms.

Like most people, Linda postponed the HIV test several times, not thinking that the results could be positive. Most people have a sense of security, thinking that HIV poses no real danger to them.

"After a long time I decided to go for the tests. I kept telling myself I was too young and healthy and that there was no way I could be HIV-positive," said Linda.

"People look at themselves in the mirror and say, 'Hey, I haven't been sick, I have no pimples and I have lost no weight in the past year. So I cannot be HIV-positive."

Her worst nightmare became reality in October 2002 when she was diagnosed as being HIV-positive.

The memories
Linda still remembers the counsellor's words clearly.

"You are not the only one who is HIV-positive. You are not going to die now. We are all going to die, but you can live longer if you take care of yourself," Linda tearfully recalls.

"I felt my temperature rising to top. My heart was beating fast and I had a pain in my chest. The room went dark and I heard a voice from a distance asking, 'Are you okay, Linda?' I could not answer as I did not know where I was. The voice slowly faded in the dark as I heard a little girl's voice screaming very loudly. The sounds of her screams became louder and stronger. I could not take it anymore. I covered my ears with my hands to avoid hearing her pain and everything just went blank."

"I do not know for how long I passed out, but before I opened my eyes, I remembered what had just happened. I prayed so hard for it to be just a dream, but it was reality," she said.

"I was shocked, confused, scared and angry at the world, at God and at every partner I ever had sex with. I could have killed someone that day," she said, wiping away tears. "I thought life was over and that I was going to die."

Body and shock
Shock is perfectly normal under these circumstances. News like this is something to which the whole body reacts.

On her way back home Linda tried to figure out an easy way to tell her parents, but the environment at home prevented her from sharing what was troubling her.

The invisible epidemic
Fear of rejection causes many people to deny or not disclose their status. Therefore, the epidemic remains largely invisible.

"I kept wishing for a perfect moment to tell my parents, but the time was never right. I think it was the hardest thing I ever had to do in my life," she said.

When she finally told her parents she wished she didn't have to.

Telling her parents
"My mother kept quiet. She was crying. Disappointment and disbelief were written all over her face. My father was disgusted. I sat down patiently giving them time to digest the news and wished they would comfort me as if I were a little girl. My wish was in vain," she said.

The pain became unbearable for Linda as she felt like an outsider in her home.

"My parents had a hard time dealing with my status. They accused me of sleeping around," she said.

The rejection begins
Her father told everyone including the neighbours. It seemed as if he had little concern for her. Soon her status was the talk of the town.

Preachers made an example of her at church. They said HIV/Aids was a punishment from God. People stared at her whenever she sang or prayed. In their minds they thought life was going to be over for her soon.

Three weeks after she was diagnosed, she was hospitalised for depression.

During her stay in hospital, she decided to talk directly to the virus. These were her words: "I have accepted the fact that you can kill me, but I can kill you by killing myself".

And so she negotiated a deal with the virus.

Search for a new life
She left home in search of a better life.

"Life was not easy. Every night I cried endlessly. I wanted to understand this disease before I could mend the broken pieces of my life," Linda said.

Linda worked at Panorama in a private home the following year. Everything was fine until the day she told her employer about her HIV-status. The treatment was worse than that at home.

"I was often told to be careful, especially with the kids," she recalls.

She wasn't surprised by the rejection, as she had been down this road before.

Learning about her status
She left her job and decided to join the Treatment Action Campaign (TAC) as a volunteer. She wanted to learn more about her status. She met new friends, who knew exactly how she felt.

It was while she was working as a secretary in a private company, that colleagues started questioning her involvement with the TAC.

"I thought disclosing my status and living with my parents would be the toughest thing I had to deal with, but I was wrong," she said.

"I thought disclosing at work would make my life much easier. Instead it got worse. My HIV-status became the main topic of conversation. Everyone was passing bad comments. I later resigned, as I could not take the stress anymore," she said.

The healing process
Eventually, she started telling people about her HIV-status. She thought if she came out with her HIV-status as a young person, others would accept that HIV is not a death sentence.

"Disclosing was a healing process in my life," Linda said.

Many people have contributed in discriminating against people who are HIV- positive – even if they are not aware of doing it. Society's prejudice has forced people who are HIV-positive to form separate social groups. People living with HIV are not dying of the disease. The discrimination and stigma from society is what kills them.

In the end, the effects of living with HIV/Aids are more psychological than physical. People are still getting infected with this deadly virus every day.

Despite knowing how to protect themselves, protection is not always possible.

Moving on
"Life has not been easy, but I came a long way and won't let people's ignorance pull me down. I am discovering more about me and life every day," she said.

She said lonely moments and cold nights were frequent and that she could not run away from them. These were times when she asked herself why this had to happen to her and wondered what was next?

Linda said she has learned to be responsible and takes good care of herself. She stresses the fact that even if people think HIV/Aids can't happen to them, it can. And that using condoms can indeed prevent the spread of HIV.

Many HIV-positive people live lonely lives because of the stigma attached to the virus.

"I believe disclosing is a healing process. You get used to talking about the virus and you accept it yourself. The virus has changed my life for the better," she said.

*Not her real name.

- (Charmaine Quma, Health24, updated October 2008)

Visit Health24’s HIV/Aids Centre

 

advertisement
 
 

Rate this article

Poor
Excellent
 
 

Your Comments

Pamela 2009/10/29 Comment #1

Support

My friend of 20 yrs recently found out that she was positive and was infected by her late boyfriend who died a few weeks ago, my heart broke fo her and wish I could tell her it will be fine but I know she' s struggling to get to terms with the whole HIV thing, I need to know what and how to support her without making her feel like a victim, shamefull and like its the end of the world for her. I have been in situation with members of my family and managed to deal with but it feels diff with my her

Maryna 2009/10/29 Comment #2

HIV/Aids

When I read an article abour being HIV positive, I want to cry, nobody deserves to get infected, but bad things happen to good people and it always will. I hope that I never have to go through this, as living with HIV is not easy.

Bulelwa Mdoko 2009/10/29 Comment #3

HIv status

Guys
This is not death sentence, if someone is infected you have to chose your life and how you are going to be. I got a freind who died after 12yrs without being sick, she looked after herself, change life style even the son is 15 yrs doing fine cause they both go through their status, they went to counselling, i mean the boy can look after himself. Please don' t let the stingma ruine yourlifes. Stay calm and think.

Anonymous 2009/10/29 Comment #4

HIV

Please stop telling people who don' t have the virus that it is not a lofe sentence, stop making young girls out there think it is ok to have HIV, you are not doing them any good.Yes HIV doesn' t kill but Aids does, tell them the truth, tell them about all the tests you go through, making sure your cd4 count is ok, tell them that when your CD4 reaches 200 you have to start arv treatment, tell them that you have to take the pills at the same time everyday, tell then it is not easy!!

Lizo 2009/10/29 Comment #5

I think we all need to deal with it

To me this is simple, HIV is reality whether tou are +/-. the best thing to do is to understand and not judge. Anyone can get it. Me too I am not sure of my status riht now but I think I support those who have this deaseas , I feel their pain of being rejected. I love those who are even ignorant.

Anonymous 2009/10/29 Comment #6

hiv

i dont know my status to...i mean u might be faithful but ur partner might not be sooo lets educate ourselves and u can never really know how 2 comfort sum one who has it if u dont. it will feel like an insult to them. so instead of pretending to understand just be there 4 them always...and scary as it might be, we should know our status

Anonymous 2009/10/29 Comment #7

Hiv

For most people not to reveal their status is because of the stigma attached.The sad thing is that most people who dont know their status always say things.Its not easy expecialy if you start the arvs,you get sick before you get used to the medication,but its part of life we all going to die.people must take care of themselves whether -/+.People must remember that you can live longer and the normal life like everyone take care and ensure you live a healthier as advise are out there.

Anonymous 2009/11/10 Comment #8

living with the virus as a young person

im 21 nd ws diagnosed last year,having to listen to other students at campus make nasty comments about the virus and people who have it i tink is the hardest ting fo me.i have a great support network,iv disclosed to my close 4rnds nd ma sista bt i find it difficult to tell ma mada.anada difficult part is having to take ma medication everyday its a constant reminder of the diseas...i always pray dat one day wen i go 4 ma cd4 they' ll js say its not there anymo,bt i gues dats just wishful thinking.

kgomotso 2009/11/16 Comment #9

hiv / secret

hiv is alive . i stil didnt tell anyone that i am +. I was diagnosed in 1999 til today. ihavent been on treatment and now i started to feel some pain. aia have a 16 yrs old son. I feel so bad and need help.

The comment facility of this article has been closed.

 
 
 
 
 
 
Get a Quote

Looking for a medical scheme? Get a quote today

Ask an expert

Do you need expert advice?

Blogs

People are blogging about HIV/Aids