Goldenhar syndrome affects one side of the face with absence of the ear on that side. The brain itself is not usually affected.You can read more on Google by entering 'goldenhar syndrome' You do not mention where you live. This young boy needs to be correctly diagnosed and assessed for possible plastic surgery.It would be best if he was seen initially at the genetic clinic of a major paediatric teaching hospital such as Red Cross Children's hospital in Cape Town or Steve Biko Academic hospital in Pretoria.
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