Our expert says:
From your description of the detioration in your husband it definitely sounds as though the 'cure' is far more dangerous than the condition.
At this point I would suggest getting a 2nd, 3rd or 4th opinion until you find s specialist that is willing to 'work with you' to bring your hubby back to his former self. I would also consult with a nutritionist (not necessarily a dietician) that has some sensible suggestions to help improve the damaged gut lining.
Although gastroenterologists rarely support the role that food sensitivities can play in UC, I have had great success in assisting patients with UC by excluding certain foods (especially sugar, wheat, dairy, coffee, processed food, alcohol). In some cases this may have to run concurrently with appropriate medication, however it often means being able to use lower doses more infrequently.
If the medication is what's doing the damage (and it sounds as though it is) the sooner he stops, the better. Once he starts to regain his strength the whole question of UC can be reassessed. He may find that his condition responds well to dietry modification and a well coordinated nutritional approach, which would be great.
I don't think he will get much benefit from the supplements while still taking the cortisone and Salazopyrin. The probiotic and Omega 3 oils are very good, but he will need a far more focused and detailed approach.
Hope this helps.
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