Our expert says:
My dear, of course you are allowed to answer Jo's question on my site. I am so sorry to hear about all the distress you have experienced. We have a lassie in our family with Prader Willie and although the condition does present problems which one has to deal with on an ongoing basis (like ensuring that she does not overeat) and she did go to a special school, she lives a fulfilling life and is an absolute darling. Get as much help as you can from professionals like the dietitian and also get together with a physiotherapist because these children tend to not have strong muscles, so they don't do much exercise which makes the weight problem worse. If one can get them to be active then it helps a lot. You mentioned that the costs are a problem. I don't know where you live, but if you are anywhere near a large city (Pretoria, Durban, CT, etc) then contact your nearest teaching hospital (for example Tygerberg Hospital in CT) because there are clinics where you can get help at much reduced costs. Please also look after yourself, because you need to be healthy to help your beloved son.
Holding thumbs for you and the lad
The information provided does not constitute a diagnosis of your condition. You should consult a medical practitioner or other appropriate health care professional for a physical exmanication, diagnosis and formal
advice. Health24 and the expert accept no responsibility or liability for any damage or personal harm you may suffer resulting from making use of this content.