advertisement
Question
Posted by: Eugene | 2010/05/24

Interstitial cystitis

Hi Doc

Do you know of a support group for interstitial cystitis sufferers in South Africa? I am a 33 year old male, was diagnosed a year ago. I was shocked to find the " offical FDA approved"  treatment called Elmiron is not available in SA. And the worst was that very few doctors know how to properly treat it. It was available, but taken off the market in SA due to it not making enough money.

I want to start a website for all IC sufferes in SA to make their voices heard. If anyone is interested they can contact me on reikisa2004 at yahoo dot com.

Do you think this is a good idea?

Not what you were looking for? Try searching again, or ask your own question
Our expert says:
Expert ImageCyberDoc

Hallo Eugene
See http://www.icaction.com/
I don't know of one in South Africa but I'm sure you'll find interesting articles on this one.
Forming a local supportgroup is a good idea - maybe you can start a group on facebook?
Dr Bets

The information provided does not constitute a diagnosis of your condition. You should consult a medical practitioner or other appropriate health care professional for a physical exmanication, diagnosis and formal advice. Health24 and the expert accept no responsibility or liability for any damage or personal harm you may suffer resulting from making use of this content.

1
Our users say:
Posted by: Cyberdoc | 2010/05/24

Hallo Eugene
See http://www.icaction.com/
I don't know of one in South Africa but I'm sure you'll find interesting articles on this one.
Forming a local supportgroup is a good idea - maybe you can start a group on facebook?
Dr Bets

Reply to Cyberdoc

Have your say

Thanks for commenting! Your comment will appear on the site shortly.
Thanks for commenting! Your comment will appear on the site shortly.
advertisement