Our expert says:
You may remember the old story about the group of blind men who encountered an elephant ? The one who found the legs insisted that an elephant was very like a tree ; the one who met the trunk insisted they'd much more like a snake ; and the one who found the tusks said it was obviously more like a spear. In a way they were all right, and all wrong - they understood the part they found, but weren't able to stand back and see the whole elephant, as a combination of the elements they had noticed.
But it's obviously puzzling when two different specialists disagree in the same areas, about diagnoses which should be rather obvious.
Whatever the primary problem, it sounds as though you are unusually sensitive to side-effects of meds, and understandably very worried about your physical condition and fear that something serious is going on. And that anxiety is probably contributing greatly to the symptoms that are troubling you.
I understand the ideas all the different specialists may have had, but for instance, I find the suggestion of thoracic outlet syndrome, or any other such neurological / orthopaedic problem unconvincing as an explanation for symptoms if they only started after you began taking certain specific meds.
Maybe a more general physycian ( within the field of general internal medicine ) could do better to more comprehensively assess all your various symptoms and concerns in multiple systems.
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