Our expert says:
This is one of the most difficult problems to dealwith in a young patient, as the nature of these webs in the glottic/subglottic area are to close up as soon as they are opened. Time will tell how effective the treatment may be, and doing a tracheostomy may be a life saving procedure if required. Your ENT will work closely with your Paediatrician, and the team usually decide when intervention is required. The reality is that your son can not live without an airway, and your doctor will aim to achieve an adequate airway, whilst waiting for him to grow, and helping himself to open his airway. Unfortunately there are no guarantees with this type of problem, and it is impossible to predict how long it will take to overcome the problem. If a traceostomy can be avoided, your doctor will definitely do so, but it is also his/her duty to protect your child's airway.
The use of stents create its own set of problems, as one is inserting a foreign body in the airway, which causes irritation, and ultimately the granulation tissue will close up the airway. After every procedure ,one may find that the airway is a little better for longer, but it will always try and close up again. One will eventually reach the point where the amount of closure is of no significance, in which case your son may breathe easily. Other factors such as infections make the problem worse, causing swelling to an already compromised airway.
This is a longterm problem, with no easy solution or guarantees, but with constant monitoring of the airway, one will be able to manage the problem. If as a last resort your doctor suggests a traceostomy, remember that this is temporary, and can be removed after the problem is solved. His voice will get better with time, and should not be the main concern now, as beinb able to breathe is far more important at this stage.
The information provided does not constitute a diagnosis of your condition. You should consult a medical practitioner or other appropriate health care professional for a physical exmanication, diagnosis and formal
advice. Health24 and the expert accept no responsibility or liability for any damage or personal harm you may suffer resulting from making use of this content.